Supporting families affected by galactosaemia through education, advocacy, and community connection across Australia
Families Supported
Years of Service
Educational Resources
Community Events
Understanding the condition and our mission to support affected families
Galactosaemia is a rare genetic disorder that affects the body's ability to process galactose, a sugar found in milk and dairy products. Without proper management, it can lead to serious health complications.
Early diagnosis and strict dietary management are crucial for preventing complications and ensuring the best possible outcomes for affected individuals.
The Australian Galactosaemia Support Network exists to provide comprehensive support, education, and advocacy for individuals and families affected by galactosaemia.
Since 2010, we've been connecting families, sharing resources, and working to improve outcomes for the galactosaemia community across Australia.
"Together, we're stronger. No family should face galactosaemia alone."
Comprehensive support for the galactosaemia community
Connect with other families, share experiences, and access peer support through our community network.
Access comprehensive educational materials, dietary guides, and the latest research information.
We advocate for better healthcare policies, research funding, and awareness of galactosaemia.
Facilitating connections between families and healthcare professionals specializing in galactosaemia.
Regular events, workshops, and conferences to bring the community together and share knowledge.
Access to support and information whenever you need it through our dedicated helpline service.
Essential resources for managing galactosaemia
Comprehensive guide to galactose-free diet management and meal planning.
Delicious galactose-free recipes for all ages and occasions.
Resources for educators and school staff to support students with galactosaemia.
Essential information for parents of newly diagnosed children.
Latest research findings and clinical trial information.
Directory of support groups, specialists, and community resources.
Supporting research and family services for the galactosaemia community
Hear from families in our community
Parent, Melbourne
"AGSN has been our lifeline since our daughter's diagnosis. The support and resources have made all the difference in our journey."
Adult with Galactosaemia, Sydney
"The community events and workshops have helped me connect with others who understand the daily challenges of managing galactosaemia."
Grandmother, Brisbane
"The educational resources helped our whole family understand how to support our grandson. We're so grateful for this organization."
Get the latest updates, resources, and community news
We're here to help and support you
agsn@agsn.org.au
Website
agsn.org.au
Address
13 Orange Grove
Kensington Park, SA 5068
Australia
ABN
86 482 037 858
For urgent galactosaemia-related questions or crisis support:
24/7 Helpline: 1800 AGSN HELP